Since moving to Hawaii in 2009, I have taken at least one night out of each month to add some carefully worded entries to this blog. Honestly, Hawaii isn't always dripping with Aloha, but sometimes there are reflections in the water.
Showing posts with label cancer. Show all posts
Showing posts with label cancer. Show all posts

Wednesday, November 26, 2014

When There is Sadness, There Are Song Lyrics

Fucking cancer. I just hate it. I hate that it stole away everything he had, and left everyone he knew with so much heartache. My heart burns with love and sadness from all of the memories I have to try to save forever, never realizing how valuable they would be. They are all I have of him now. I didn't know how important it would be to play on his indoor soccer team every season or I would've done it more than once. I didn't know how lucky I was to be invited to all of his parties or I would've gone to all of them. If I had known his life would be so short, I wouldn't have pissed away so many of our plans. I'm angry at myself for not paying better attention. Do we all feel that way about people after they have died? I'm afraid of everything else I have missed in life from all of the other people I care about. Will I regret missing everything else, too? I'm sorry for everything I have missed. I can't take it back. I wish I could have been there more. Or maybe I couldn't possibly have been there more, and I need to accept that.

Today it was the band Bastille that rocked my world, dried my tears long enough to go back to work, and helped me see perspective and light when I learned Aaron had died. It was the only thing that made me feel better.

Bastille
Weight of Living, Pt. II: All This Bad Blood

I can't say the words aloud
so in rhyme I wrote you down
now you'll live through the ages
I can feel your pulse in the pages
I have written you down now
and all the world will read you
I have written you down now
you will live forever
in eyes not yet created
on tongues that are not born
you will live forever
forever

Tuesday, November 18, 2014

Tears on my Keyboard this morning

Roughly ten years ago, we were going to music festivals together and making out in a tent. He was devastatingly handsome and I was not sure I was worthy.

We met through a college friend (that I still think is awesome, surprisingly) and the three of us had wild and sporratic adventures that were never much planned but always fun. We had stupid fun, with childish trips to ValleyScare and XFest, house parties and late night sprinkler runs. Even when he got a steady pain-in-the-ass girlfriend and started needing more relationship advice and meaningful talks about life than a drinking buddy, he remained in good humor. We connected. We took our dogs to obedience school together and they almost got expelled (actually, his was a dropout). We were real friends, the kind of friend where when you see each other again after years have passed, you're still at ease and nothing has affected that bond. He made me believe that we didn't have to grow up.

Except now we do have to grow up, because he's dying from the brain tumor that is killing him, the one that knocked him in his ass 3 years ago and stole everything. He squeezed as much as he could out of those last few years; he immediately married a pretty awesome lady and had a son, and did what he could to make sure he was fighting like hell. But Cancer is Cancer. 35 is way too early to say goodbye and leave the party. 35 is still the age of weddings and babies and astronomical mortgages, of career changes and waking up to politics, of a few failed relationships, class reunions, or maybe some crazy adventures to cool countries. It's the peak before the decline.

Aaron, you're the one that got away.




Life is a gift, albeit brief. Cancer can be a love story if it is done with strength and weathered by two people who have enough faith in what is within them and beyond them. Here is their story. I hope seeing the documentary when it is completed helps to bring me closure. Right now I can't find any in the middle of the Pacific Ocean.


Friday, August 10, 2012

Through the Single Moments

I think it's great to take on a philosophy of living in the Now. I have done enough Zenmaster reading and thinking to feel it is a suitable mindset. I'm going to immediately launch into a life-altering moment. Actually, I have several, but right now I'm just going to tell the one that touches me the deepest and carves out my pathway today. Several revolve around death which I don't find to be too much of a surprise, as it is a truly awesome moment (and by that I mean inexplicable):

Not even a year after my grandmother died of breast cancer, my aunt (48 yrs old at the time) was diagnosed with stage 4 colon cancer. She was a rather modest individual (conservative in dress and spirituality), and she was very private (didn't talk about feelings or insecurities or sex). This cancer, in addition to being a devastating diagnosis, was deeply embarrassing to her. Over the course of two years, I watched her struggle with the reality she was facing and how she tried to keep her composure and dignity-the wrath of chemo and radiation, coming to grips with all she would never accomplish, how she explained to people that she had terminal cancer, and her fights with my mother (they had always fought as siblings do, but these were even worse).

I watched her slowly die.

It was not a quick and painless death. It was an evil, crawling-up-your-leg-and-gnawing-at-your kidneys type of death. I would take off days of work when she was having a "single moment" as she called them, just to sit with her or take her shopping to distract her. She would buy me a latte and talk to me about her positive spiritual approach to overcoming this terrible cancer. She tried hard to believe she would be spared. She was weak from chemo and pale as sheets. Her hair had almost completely fallen out, but before it did, I sat with her while she had Glamour Shots taken at ProEx camera. She said she wanted to look nice in her obituary photo. When they gave them to her and we left the store, she laughed and cried as she told me stories about all of the horrible obituary photos people put in of their loved ones, and how she wanted to go out with a bang and be remembered as beautiful. She had a sense of humor about it, which helped ease the tension.

My aunt was the mother I thought I should have had growing up (I think we all wish we had other mothers at challenging times... though I am certainly glad for mine now). She was funny as hell and always the rowdy one at family gatherings. She was in a theater rodeo in South Dakota in her 20's, was a flight attendant that hawked goods from Seoul, Korea, sold pagers back when those were a big deal, bought a house all by herself, became a realtor and made big money off of house sales to the very end (she actually sold a house from her death bed)... and she totally "got" me. More than my mother. She loved travel, she was in the dating scene, she went to concerts and liked to bend rules.

She was a free spirit that didn't want to fall into the typical steps of women. She wanted to explore and have adventures. She struggled with those "traditional" desires, though... which I also relate to. She wanted a husband and family, someone to love and nurture and share the joys of life with. She was hopelessly single and tried every sort of dating scheme out there... with no luck. What I admired about her most is that she never let it stop her from doing what she wanted to do.

When she was financially ready, she invested in a few properties and bought a beautiful 1904 Victorian. Everything she ever dreamed of in a house. English garden in the back (that I helped her build), million dollar view of downtown St. Paul and the Mississippi, and all of the prestige that goes with living in a historic neighborhood. I think she made choices along her path in life that brought on her singledom (she was very picky about men and unwilling to bend about quite a few things), but she didn't deserve to die with such agony and struggle, and certainly not feeling so alone. Sadly, that was her end. She had her sister and her sister's family, and we included her in everything... but it was not her own. We made due, but the ache was always there for her.
I watched her pass through the stages of death and held her on the couch. Her last conversation with me was painful and heartbreaking. I asked her if she was satisfied with all she had accomplished in life, and she told me "no." It shocked me. It wasn't what I wanted to hear from her. It was the truth. She told me she "needed more clarity," and "it wasn't fair." It haunts me. I never told my mother about that conversation because I thought it would break her heart.
I don't ever want to die knowing that I didn't do everything I wanted to do. Of course, It would be impossible to check every thing off of my bucket list since I keep adding to it, but I intend to pursue things. I don't want to end up feeling like I didn't give life my all. I don't want to die alone. I don't want to hold back because of guilt over how it's impacting other people, and I don't want to settle for less than I deserve.

All of that said, I was to inherit her house and all of the things within it were divided between myself and my two siblings. Most of the furniture stayed there. It was a beautiful house with an original mural of a forest/swamp scene around the perimeter of the dining room, a fully stocked kitchen that had heated floors, leather embossed paneling on the walls leading up the spiral staircase to upstairs. Seriously, this house was a dream. What I couldn't shake, though, was that this was someone ELSE'S dream. I wasn't me there-I was living out her life. My mom still referred to it as "Kim's house" and "Kim's couch" and "Kim's garden," and I knew, after trying to afford the mortgage for a year with roommates, that I needed to let go and get out. I was living in a museum and it would never leave my mother's mind. Leaving was the key. It was the only way for me to truly be happy. So I ditched it. Let my mom and dad sell it, quit my job and moved to Hawaii... my aunt's favorite place.

So here I am, three years later from when I first packed up that house and moved to Hawaii. I'm a little more certain I made the right choice. I think about my aunt all the time. I wish she was here today to share in my trials. I want to thank her for pushing me to get out there and do something with myself, instead of taking the easier path. It has been lonely and it has been uncomfortable, but I have grown in the most amazing ways. I have learned to love myself and to earn my way. I have suffered and I have gained. All from remembering that life is short.

Life IS short, and life is beautiful. Carpe diem.